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An act relating to end-of-life care and pain management

The House proposes to the Senate to amend the bill by striking all after the enacting clause and inserting in lieu thereof the following:


(a)  The office of the attorney general, in cooperation with the departments of health and of disabilities, aging, and independent living, shall convene and lead a group of stakeholders to discuss and make recommendations on legislative and non-legislative solutions for improving:

(1)  palliative care,

(2)  end-of-life care,

(3)  management of chronic pain, and

(4)  access to these services for children.

(b)  Participants shall include:

(1)  the Vermont Program for Quality in Health Care;

(2)  the Hospice and Palliative Care Council of Vermont;

(3)  the Vermont health care ombudsman;

(4)  the Vermont long-term care ombudsman;

(5)  Patient Choices at End of Life – Vermont;

(6)  the Vermont Alliance for Ethical Healthcare;

(7)  the Community of Vermont Elders;

(8)  the Vermont Ethics Network;

(9)  the Vermont Health Care Association;

(10)  the Vermont Association of Hospitals and Health Systems;

(11)  the Vermont Medical Society;

(12)  the Vermont Coalition on Disability Rights;

(13)  the American Cancer Society;

(14)  AARP Vermont;

(15)  one representative appointed by the speaker of the house and one senator appointed by the president pro tempore; and

(16)  other interested stakeholders.

(c)  The group shall consider:

(1)  available data and studies from existing sources and evaluate their utility for driving improvements in palliative care, end-of-life care, and pain management services across settings in this state;

(2)  the value and feasibility of conducting ongoing studies or preparing an annual report card, or both;

(3)  recommendations for improving ongoing coordination of activities directed toward improving palliative care, end-of-life care, and pain management services throughout the state;

(4)  how best to protect the interests of persons who:

(A)  have a terminal illness,

(B)  are receiving hospice care, or

(C)  are suffering chronic pain;

(5)  how to advance the goal of improving health care services for children with painful or life-threatening medical conditions, including:

(A)  the current availability of insurance coverage for pediatric palliative care services and treatment for chronic pain, and

(B)  avenues for increasing children’s access to care;

(6)  recommendations for improving methods of informing consumers about options in this state for end-of-life care, palliative care, and management of chronic pain, and about the importance of having an advance directive, including means to ensure that:

(A)  persons suffering from chronic pain are aware of their right to request or reject the use of all medications, and

(B)  persons with a terminal illness are informed about their end-of-life care options;

(7)  recommendations on the adoption and implementation of statewide standards on pain management for each of the health care professions licensed in this state; and

(8)  such other issues as the group determines necessary and appropriate.

(d)  No later than January 15, 2009, the stakeholders’ group shall provide a written progress report on its initial findings and recommendations, including the appropriateness of an annual report card, to the house committees on human services and on health care and the senate committee on health and welfare.  No later than December 15, 2009, the group shall provide a final report on its findings and recommendations, including recommendations on the group’s continued duration and future activities, to the house committees on human services and on health care and the senate committee on health and welfare.

(e)  Participants of the stakeholders group established by this act who are members of the General Assembly are entitled to receive per diem compensation and reimbursement of expenses as provided by 2 V.S.A. §406.

Published by:

The Vermont General Assembly
115 State Street
Montpelier, Vermont